Read Part 1 here
I adore Rodney Mullen. For those of you who don’t recognise the name, he is the Godfather of modern street skating. Pretty much all of those impossible looking tricks you see people doing (the ones that look like pure wizardry) were invented by him. Now, I’m not a skateboarder myself, but at that particular time I was going through a Roller Derby ‘fresh meat’ training program (the Derby thing will get it’s own post in good time…) and I was finding that Mullen’s TED talk ‘On Getting Up Again’ was really helping me deal with getting used to hitting the floor so often. At least, that’s what I told myself – in truth, I just really like hearing him talk. Continue reading “The Uphill Struggle For A Diagnosis Part 2”
A lovely woman I used to work with saw me wince as I tried to close a door. She asked all the usual, polite questions – was I okay, had I been injured – to which I replied that my shoulder was just inflamed, as all my joints were wont to do. No big deal; I was coping. A few more delicately presented but probing enquiries led me to explain that I had pretty much given up on getting any help from my GP: Osteopathy, yoga, and the Endometriosis diet were holding my body together, despite all the pain. She then told how all of her mother’s symptoms were dismissed as being related to old age, so she decided to keep a pain diary. Lo and behold, a pattern emerged, and her doctor could no longer continue to ignore Continue reading “The Uphill Struggle For A Diagnosis Part 1”
Even someone who has been living with illness for a significant amount of time may discover that a person close to them has never truly understood what daily living feels like for the one who’s suffering. Continue reading What’s the deal with all the spoons?
One afternoon in December 2012, I heard somebody thumping on my front door. The building is not the easiest to get into, so I assumed it was one of my neighbours in distress. I grabbed my keys, and opened the door to spot, not a panicked neighbour but an innocuous, yet unfamiliar looking young woman.
“Are you Jacqueline?” She asked.
“Yes” I replied; curiosity piqued.
“I’m from the Doctor’s Surgery. We’ve been trying to call you. You need to get a blood transfusion ASAP.” She handed me a referral letter to take to the hospital.
Allow me to add some perspective to that conversation. I have Endometriosis, an inflammatory illness that causes womb tissue to grow in all manner of unwelcome places, which then proceeds to create a tonne of internal bleeding. Continue reading “What Does Self Care Actually Look Like?”
As this is my first post, I thought using the ’30 Things…’ invisible illness meme would be an ideal way of introducing myself, as well as providing a little insight as to what the purpose of this blog is. So, without further ado, here are the 30 things you may not know about my invisible illness.
1. The illnesses I live with are: Endometriosis & Fibromyalgia (as far as I know, anyway. There’s always the chance that something else might be lurking in there…)
2. I was diagnosed with it in the year: 2003 for Endometriosis and 2015 for Fibromyalgia. Continue reading “30 Things You May Not Know About My Invisible Illness”