When I first met The Bear, I was a party-girl; drinking, smoking and dancing into the wee hours. Spontaneous and unpredictable, perhaps even slightly unhinged – but not enough to fall into the cliche of a terrifying histrionic.
We were from different cultures but shared similar, mildly chaotic upbringings. Continue reading “The Martian Princess and The Bear: A Shared Journey Through Chronic Illness”
It can be difficult, nigh on impossible even, for the chronically ill to find a real sense of peace. On a daily basis, our bodies refuse to obey the most basic rules of human existence, while our appearances give no outward indication of why our lives can be so difficult. We often exist in-between worlds: too able-bodied to be considered truly disabled, yet far too ill to participate in life the way we’re ‘supposed’ to. Finding a place to escape the heavily polarised ‘pull’ of opinions that people are often all too willing to share could be considered to be an essential part of self-care. Even with the various activities and hobbies that I love, the one thing whose absence sincerely affects my psychological wellbeing is going to the cinema. Without these periodic excursions into ‘otherness’, the emotional cracks start to become chasms – it is the sanctuary of the cinema that prevents me from falling in. Continue reading “The Sanctuary Of The Modern Day Zoetrope”
If we were having coffee I would tell you that this past week was littered with physical and emotional shocks. Continue reading “Weekend Coffee Share (On Wheels)”
We’ve all met them. Those allies who, either deliberately or unconsciously, make you feel so much worse about yourself, about the way you choose to live, and how you deal with your own challenges. These are the people who, when you’re at your most vulnerable, make you feel selﬁsh, ill-informed, and downright idiotic: and their attempts to ‘help’ you are about as beneﬁcial as rubbing sand into your eyes. Continue reading “3 People The Chronically Sick Always Meet”