I absolutely adore the Netflix original show, Santa Clarita Diet, but EDS warrior and activist Annie Elainey has broken down some of the reasons why this comedy horror resonates so much with me. And it’s more than just the delicious Timothy Olyphant… Continue reading It’s Justified…
When I started this blog, it was my aim to keep it as apolitical as possible: a decision that has has been quite difficult to maintain with all of the disability rights issues that are at the forefront of a lot of some very harsh government policies, in the UK.
But, just for today, I’m changing my mind.
Those of you who read my blog regularly will know that I have a HUGE issue with physical illnesses being treated as though they are purely psychological. This tends to occur when organisations are tardy in catching up on the latest research or are dealing with a rare disorder for which they need more ‘proof’ of existence. In addition, in the UK every treatment has to be evidenced based; which is great for the most obvious illness like certain cancers, but not so great for complex conditions that create ‘cascade failures’ across multiple systems. So, even if 20,000 patients are making the same statement until there is some kind of empirical evidence, those statements will always be treated as anecdotal. I want to show you why this can be terribly problematic. Continue reading “A call To Action: Believe In Bethanie”