I’m going to try really hard not to make this a rant but, be warned, for reasons I am bizarrely unsure of, I am in full Grinch mode this Christmas. It’s either due to the medical treatment I’m currently undergoing, or an unexpected lack of Ice Hockey… Continue reading “3 Tips On How To Treat Your Chronically Ill Guest At Christmas”
I’ve always hated to-do lists. Rather than being a gentle reminder of the tasks I had yet to complete, they loomed over me like a book of judgement: solid black and white evidence of my own befuddlement, poor will power or plain, old-fashioned laziness. It would never matter how many items that were crossed off as completed – any gaps made me feel as though I had allowed the day to go to waste, particularly if it was some of the items at the top of the list that had been left in fruition limbo. The troubling thing is that those feelings of failure and inadequacy were already prevalent before my health completely caved in… Continue reading “Even Baby Steps Can Take You Somewhere”
I feel as though I’ve been having the same conversation with The Bear since last November… Continue reading “Confused, Or Just Not Listening?”
I felt my energy ebbing away and knew that I was destined to experience yet another unproductive day. I’d had so many of those recently; and despite the fact that most people understand that the very substance of the term chronic means I will never fully recover, I still get asked if and when I will be ‘better’.
Fibromyalgia is a bit of a ‘catch all’ diagnosis. It’s often handed down when doctors don’t know (or do not have the incentive to discover) what’s causing the myriad symptoms that the patient is suffering with – and those symptoms are myriad; over 200 at the last count. Because of this complexity, finding the root cause or best treatment for each individual can be akin to searching for the proverbial needle in a haystack. Add to the mix the fact that Fibromyalgia loves company, and rarely travels without a companion illness, and it becomes clear that medicinal platitudes are rarely going to be helpful; it’s the person that has to be treated, not the illness. This is why some of the best allies are the ones who listen.
I am completely unashamed to say that I, like so many others, discovered the brutal and brilliant sport of Roller Derby through the Drew Barrymore movie ‘Whip It’. Even though it is a really technical sport with enough rules to make even the most ardent bureaucrat flinch, it still seemed to be the type of team sport that would suit the way my brain worked: gameplay travels in one direction and the very clearly marked boundaries make it quite difficult to find yourself accidentally offside. There was, however, one small problem – my health was languishing at the bottom of a metaphorical toilet bowl. Continue reading “A Broken Derby Doll”
A couple of weeks ago I wrote this post, detailing the trouble I was having with the only mode of treatment I was being offered (there will be a post next week about re-discovering a privately funded treatment that had been right under my nose, and why I was right to be suspicious of the program); the psychologist that I was dealing with kept trying to draw me back into the schedule that I had explicitly told him I wanted to be extricated from. As I had explained the link between Ice Hockey and an alleviation of my symptoms at an earlier meeting, he kept trying to use ‘sports based language’ as a psychological ‘trick’ to get me to relax into his way of thinking. What he didn’t know, however, is that my sister is a psychology major, so I’ve learned a lot about human behaviour and manipulation over the years. A non-sports fan, and more importantly, a non-Hockey fan trying to ‘match and mirror’ what he thought my language would be just made me even angrier – it was a blatant attempt at control, and further proof that I could not place my trust in him. This is the email I replied with. Continue reading ““First, Do No Harm…””
Desperation led me to make a very poor decision about my own treatment. Continue reading “Look Before You Leap”
Is it ever possible to extricate yourself from the preconceptions of any medical professionals you have to deal with? Continue reading A Medical Trojan Horse?