Coffee From A Broken Cup

The fatigue that comes with chronic illness is so much more than just feeling tired or sleep deprived.  Continue reading Coffee From A Broken Cup

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I Have A Penchant For Rejecting Talking Therapies. How Do I Overcome This?

This is not a rhetorical question.  Can somebody please help me to understand how to utilise talking therapies?  Because in all truth and honesty they have never made sense or been of any use to me. Continue reading “I Have A Penchant For Rejecting Talking Therapies. How Do I Overcome This?”

Animal Magnetism: Ear Acupuncture & A Chemical Menopause

Due to some unfortunate experiences over the years I would usually say an emphatic ‘no’ to any medical treatment that that upsets my body’s hormonal balance.  But after my last trip to the emergency room, I realised that I had to reconsider my position.

This was not my first dance with the drug PROSTAP, but unlike so many of the other hormonal treatments I’d had in the past, it didn’t exacerbate my symptoms (everything else caused excessive bleeding) or create a slew of hideous side effects (the Mirena Coil issues are a blog post unto themselves).  PROSTAP in effect creates a chemical menopause, switching my ovaries off (or turning them down to a point where their effects are negligible) and thus curbing most of the worst symptoms of Endometriosis.

I was still quite reluctant when the idea was originally floated, but it was made quite clear to me that it would be disastrous for my internal organs to continue being bathed in hot, trapped menstrual blood on a regular basis. So even though I was technically being offered a choice between wrecking my internal organs or disrupting my hormones, it was clear that only one option was actually viable.  Figuring that perhaps enough time had passed since my last dalliance with this kind of medical intervention, I took the plunge. Continue reading “Animal Magnetism: Ear Acupuncture & A Chemical Menopause”

Feeling SO Martian Right Now…

Having suffered from Endometriosis for far longer than Fibromyalgia, ‘flare-ups’ were something that I really only associated with my deeply damaged reproductive system. They were excruciating and crippling, but also familiar and understood – I knew, for the most part, what to expect and for how long I would be a non-functioning lump of flesh. On the other hand, I would think of Fibromyalgia in terms of good or bad days and (or) weeks, but it never truly occurred to me that I was experiencing mislabelled cluster-eruptions of Fibro-specific symptoms. My almost blissful ignorance finally came to an end a couple of weeks ago.  Continue reading “Feeling SO Martian Right Now…”

Wheels, Pain & The First Avenger

As I stepped through the double doors that led to the sports hall I knew I was either just about to do something incredibly awesome, or awesomely stupid. After two diagnoses, more hospital visits that I can remember, and a full twelve months worth of distance, I I had decided to return to Roller Derby.

Now, I’m not crazy; I am well acquainted with the sport and know full well that I’d be pushing my luck straight off a cliff if I recklessly attempted to become a player, again.  No, this time I planned to step into the oval as a trainee referee. Continue reading “Wheels, Pain & The First Avenger”

3 Tips On How To Treat Your Chronically Ill Guest At Christmas

I’m going to try really hard not to make this a rant but, be warned, for reasons I am bizarrely unsure of, I am in full Grinch mode this Christmas. It’s either due to the medical treatment I’m currently undergoing, or an unexpected lack of Ice Hockey… Continue reading “3 Tips On How To Treat Your Chronically Ill Guest At Christmas”

It May Not Seem Like It – But This Is Progress

Desperation is something that the chronically ill experience on a regular basis.  It is often the driving force behind our endless internet searches, our impatience with cloth-eared medical professionals and our, apparently, ‘finicky’ eating.  But it is also often what leads us to accept a seemingly pointless, or downright risky, treatment option; even though we know it probably will not provide that fiercely desired light at the end of the tunnel.
Continue reading “It May Not Seem Like It – But This Is Progress”