The fatigue that comes with chronic illness is so much more than just feeling tired or sleep deprived. Continue reading Coffee From A Broken Cup
People outside the UK might not know this, but we had some pretty serious weather a few weeks ago. Red warnings and rhyming nicknames have been in abundance (‘beast from the east’ anyone?…) but the majority of the freezing my weather vanished almost as quickly as it arrived, taking London from sub-zero temperatures to our more expected temperate-climate chilliness. Snow days were over, home offices were closed and the water pipes started to burst in celebratory fervour. Continue reading “Water! Water! Part 1”
[DISCLAIMER] I am not a doctor and all of the suggestions in this post are entirely based on personal experience and personal research. Always consult a medical professional if you are considering an alteration in your medication in any way.
We hear a lot of chatter in many circles about the use of medical marijuana and CBD Oil in the treatment of chronic illness, and chronic pain in particular; but for those of us who are being crushed under the weight of fatigue there is another psychoactive substance that can actually offer relief, but is often left out of the conversation. Nicotine. Continue reading “My Chemical Romance”
This is not a rhetorical question. Can somebody please help me to understand how to utilise talking therapies? Because in all truth and honesty they have never made sense or been of any use to me. Continue reading “I Have A Penchant For Rejecting Talking Therapies. How Do I Overcome This?”
Having suffered from Endometriosis for far longer than Fibromyalgia, ‘flare-ups’ were something that I really only associated with my deeply damaged reproductive system. They were excruciating and crippling, but also familiar and understood – I knew, for the most part, what to expect and for how long I would be a non-functioning lump of flesh. On the other hand, I would think of Fibromyalgia in terms of good or bad days and (or) weeks, but it never truly occurred to me that I was experiencing mislabelled cluster-eruptions of Fibro-specific symptoms. My almost blissful ignorance finally came to an end a couple of weeks ago. Continue reading “Feeling SO Martian Right Now…”
A recent Roller Derby training session had left me needing crutches just to get around my poky little flat; and, no, there was no injury involved – merely a compounding of the pain that had been gradually increasing over the previous few days.
Usually painkillers, sleeping pills and rest would allow me to return to ‘my kind of normal’, but this time the pain was persistent. Two days later I was still hobbling and exhausted. Eventually noticing that I had barely left the bedroom for most of the weekend, my husband came to keep me company on Sunday afternoon. As I struggled to find a comfortable position as we watched the remake of Pete’s Dragon on the laptop, I muttered the words ‘kill me.’ A sharp jab to my upper arm made me realise that I hadn’t spoken as quietly as I had initially thought. Once the film was over, my husband returned to his duties in the mini ‘studio’ and I turned to a playlist for solace. Continue reading “3 Reasons I Am Grateful To My Fibromyalgia “
As I stepped through the double doors that led to the sports hall I knew I was either just about to do something incredibly awesome, or awesomely stupid. After two diagnoses, more hospital visits that I can remember, and a full twelve months worth of distance, I I had decided to return to Roller Derby.
Now, I’m not crazy; I am well acquainted with the sport and know full well that I’d be pushing my luck straight off a cliff if I recklessly attempted to become a player, again. No, this time I planned to step into the oval as a trainee referee. Continue reading “Wheels, Pain & The First Avenger”
The last time we made official plans for New Year’s Eve was in 2012. My significant other and I had been celebrating locally for a while, but as a non-drinker, I felt a tad awkward continually turning down offers of champagne from strangers. So that year I decided we would do something different- something that both of us could enjoy, even if it meant that the journey home would be a bit of a mission. I checked the menu, booked our tickets and started to work on the pattern for my new frock.
Then I took some poor medical advice…
I’m going to try really hard not to make this a rant but, be warned, for reasons I am bizarrely unsure of, I am in full Grinch mode this Christmas. It’s either due to the medical treatment I’m currently undergoing, or an unexpected lack of Ice Hockey… Continue reading “3 Tips On How To Treat Your Chronically Ill Guest At Christmas”