Someone Snatched My Security Blanket!

You never really know how close you are to the end of your tether until someone or something starts hacking away at it.  To the outside world it may seem like an overreaction to something innocuous, unimportant or even frivolous; but for those of us hanging from that tiny thread, it is the whole world – or at least the only sliver of the world in which we feel we can survive in. Continue reading “Someone Snatched My Security Blanket!”

“The Music Is Outside…”

A couple of posts back I dissected an article from The Guardian that claimed that there are no true outsiders, just people faking for the coolness factor. The TLDR version is that there ARE true outsiders but we are invisible to the eyes of the author of the piece.

Anyway, a couple of videos have popped up on my Facebook feed in the last few days that perfectly illustrate both the fuller meaning of outsider status and the ableism that led the author to forget or ignore the fact that we do exist. Continue reading ““The Music Is Outside…””

The Sanctuary Of The Modern Day Zoetrope

It can be difficult, nigh on impossible even, for the chronically ill to find a real sense of peace.  On a daily basis, our bodies refuse to obey the most basic rules of human existence, while our appearances give no outward indication of why our lives can be so difficult.  We often exist in-between worlds: too able-bodied to be considered truly disabled, yet far too ill to participate in life the way we’re ‘supposed’ to.  Finding a place to escape the heavily polarised ‘pull’ of opinions that people are often all too willing to share could be considered to be an essential part of self-care.  Even with the various activities and hobbies that I love, the one thing whose absence sincerely affects my psychological wellbeing is going to the cinema. Without these periodic excursions into ‘otherness’, the emotional cracks start to become chasms – it is the sanctuary of the cinema that prevents me from falling in. Continue reading “The Sanctuary Of The Modern Day Zoetrope”

Living My Life Slowly

I felt my energy ebbing away and knew that I was destined to experience yet another unproductive day. I’d had so many of those recently; and despite the fact that most people understand that the very substance of the term chronic means I will never fully recover, I still get asked if and when I will be ‘better’.

Continue reading “Living My Life Slowly”