Remembering The True Purpose Of Fear

In my previous post, I wrote about how an irrational fear had caused me to accidentally  sacrifice something that eventually turned out to be incredibly pleasurable. The issue I’m dealing with now is what to do when the danger is real and the apprehension is logical.  Continue reading “Remembering The True Purpose Of Fear”

The Patient By Gaslight

Due to an interesting encounter with another GP, I made a second Subject Access Request in order to actually see the values of cortisol in my blood, plus whatever statements the previous GP had made about my condition.  Gentle reminders usually have to follow the initial request, and this approach has worked in the past, but even with the nudges, all I was getting was silence. As the blood results were my real concern I decided to try and get that information in isolation from the rest of the records: and getting my tetanus booster provided the perfect opportunity.  Continue reading “The Patient By Gaslight”

A Hidden Agenda?

I’ve detailed in the posts here and here how difficult it was to get someone to take my symptoms seriously. One of the most important aspects of that journey was how convinced the doctor was that I was suffering from some kind of anxiety – to the point of talking over me when I tried to protest. At the time, I just believed that he was making a huge assumption based upon one blood test. Nearly nine months down the line inconsistencies have surfaced that suggest something else may have been at play. Continue reading “A Hidden Agenda?”

Bread, Barley and Blood

I’m not writing this for your sympathy: I have no need, or desire, to receive a plethora of ‘get well soon’ messages (not to be ungrateful – it’s just a little beside the point…)  I’m writing this for the people who, like myself, cannot use the word ‘allergy’, but know all too well that certain substances are detrimental to their health. I’m also writing this for the people that goad them.  The people that claim that an absence of an EpiPen is a sign that we are merely fussy eaters: that the substances we put into our bodies have zero effect on the illnesses we suffer from.  The ones who believe that if a reaction isn’t immediate and deadly that the ‘sensitivity’ is fake.  This horror show is for you.

WARNING: GRAPHIC DESCRIPTIONS OF THE MENSTRUAL CYCLE ARE CONTAINED IN THIS POST. Continue reading “Bread, Barley and Blood”

3 People The Chronically Sick Always Meet

We’ve all met them. Those allies who, either deliberately or unconsciously, make you feel so much worse about yourself, about the way you choose to live, and how you deal with your own challenges. These are the people who, when you’re at your most vulnerable, make you feel selfish, ill-informed, and downright idiotic: and their attempts to ‘help’ you are about as beneficial as rubbing sand into your eyes.  Continue reading “3 People The Chronically Sick Always Meet”