You never really know how close you are to the end of your tether until someone or something starts hacking away at it. To the outside world it may seem like an overreaction to something innocuous, unimportant or even frivolous; but for those of us hanging from that tiny thread, it is the whole world – or at least the only sliver of the world in which we feel we can survive in. Continue reading “Someone Snatched My Security Blanket!”
A recent Roller Derby training session had left me needing crutches just to get around my poky little flat; and, no, there was no injury involved – merely a compounding of the pain that had been gradually increasing over the previous few days.
Usually painkillers, sleeping pills and rest would allow me to return to ‘my kind of normal’, but this time the pain was persistent. Two days later I was still hobbling and exhausted. Eventually noticing that I had barely left the bedroom for most of the weekend, my husband came to keep me company on Sunday afternoon. As I struggled to find a comfortable position as we watched the remake of Pete’s Dragon on the laptop, I muttered the words ‘kill me.’ A sharp jab to my upper arm made me realise that I hadn’t spoken as quietly as I had initially thought. Once the film was over, my husband returned to his duties in the mini ‘studio’ and I turned to a playlist for solace. Continue reading “3 Reasons I Am Grateful To My Fibromyalgia “
I absolutely adore the Netflix original show, Santa Clarita Diet, but EDS warrior and activist Annie Elainey has broken down some of the reasons why this comedy horror resonates so much with me. And it’s more than just the delicious Timothy Olyphant… Continue reading It’s Justified…
If we were having coffee I would probably be face down on the table telling you that I’d experienced the best worst night in a long time.
Desperation is something that the chronically ill experience on a regular basis. It is often the driving force behind our endless internet searches, our impatience with cloth-eared medical professionals and our, apparently, ‘finicky’ eating. But it is also often what leads us to accept a seemingly pointless, or downright risky, treatment option; even though we know it probably will not provide that fiercely desired light at the end of the tunnel.
Continue reading “It May Not Seem Like It – But This Is Progress”
I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.
If someone had told me a couple of months ago that changing my mattress could alleviate some of my symptoms, I would have assumed I was having one of those ‘yoga and green tea’ conversations: you know the ones – where people with no understanding of your illness impart their unsolicited wisdom about the best way to ‘cure’ yourself. However, in this case, what they told me would have been true. I’ve known for a long time that a decent mattress is one of the keys to a decent night’s slumber, but sleeping on an N:rem mattress takes your nightly rest way beyond merely decent.
Much as I hate to admit it, I’ve been feeling a little s******d of late (yes, the word makes me very uncomfortable). Having a prolonged and confusing flare-up of my Endometriosis has led to me slipping into a strange and disconcerting existence where the Fibromyalgia doesn’t have to fight so hard to retain dominance. The additional issue that my GP appears to believe that Fibromyalgia doesn’t need to be treated at all has left me having to figure out my own regimen without access to any kind of safety net or physical support network. Continue reading “Let’s talk About Stress, Baby…”